Showing posts with label stem cell. Show all posts
Showing posts with label stem cell. Show all posts

Wednesday, May 1, 2013

Day 62 Walpurgis Night - Alert

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... April 2012, Walpurgis Night 
It was very hectic weeks after my trip to Istanbul. I had to work away a lot, both for the Easter break and after the trip to Turkey. On May 7, I would be at MS rehab in Torsby for 19 days. 

I could not work all day even though I ate Modiodal. It was a very difficult period of time. Full schedule of meetings and negotiations. Not only that. I also had many visits to the hospital booked that weeks. 

It is so sad when I can not manage to solve all tasks. I usually have a good strategy to get everything done at my pace. It is important not to rush, then everything getting messy. This period, I had no options. It was just to go all in. 

On Walpurgis Night (30 April), we have a tradition in Sweden to light huge bonfires. The kids and my friends had dragged up firewood and branches of a substantial stake at the country house. Unfortunately, I did not dare turn on. It was too dry in the woods. I did not want a forest fire. As the pile was lying until we had our guys weekend. (No one under 80 kilograms, may join) One of my friends decided to light the fire then. It had been raining and it was wet in the woods. 

After he tried to get the fire throughout the day without success, he took to the bottle. He had consumed 5 litres of lighter fluid, 10 boxes of matches and how much newsprint anywhere. He had also dropped from 5 gallons of diesel fuel from the excavator. I've never seen him give up. Never, ever, but the wood of the pyre was more acidic than him. ☺
To be continued...


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Today, +14 after stem cell treatment.
It has been lot of work again. My shape is good. My legs are more spastic than before. Anyhow I can walk more. Not so much longer, but I can keep up all day. I am not tired in the afternoon. It could be very good days. We´ll see in the coming days if I need a daytime sleep.

It seems that the higher brain functions are somewhat more rapid. My body functions last a little longer. It is equal to buying better batteries to the kids toys. They can play longer. 

As I mention before, it is to early to say if the energy is here to stay. Now it has been two weeks after the stem cell transplant. I don´t know yet if I got the real cells or placebo.

The coming weeks will give the answer. 

Saturday, April 20, 2013

Day 53:25 Captured - Spring

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... February 2012, Captured 
The wife and daughter were at the ski camp. I was home alone for a weekend with our disabled son. He had personal assistants who went home 20:30 in the evening. At night, the intention was that the family would take care of him. 

I had been a little bad that day. In the afternoon, I had taken an aspirin because I felt I had a little fever. The assistant went home and I fell asleep on the couch watching TV.

After a few hours I woke up and was boiling hot. I had a cramp in your entire body. I could just move the right arm and hand. What's going on? I could not get up off the couch. The body was so tense that it hurt. Furthermore fever was high. 

Thirsty and worried about our son who was upstairs, I tried to roll off the couch. The consequence was that I got stuck in a very uncomfortable way under the sofa table. The sofa table is a heavy glass table with many art books under the glass. In addition, underfloor heating on. I NEEDED NO MORE HEAT! 

I lie under the table, caught, like in a mousetrap. Luckily my phone was on the couch. I managed to achieve it with the right hand. I called the numbers I knew. No one answered. What do I do now? 112. I called the ambulance. It comes after a while. The medics lift away the glass table and lift me on the stretcher. They also go and fetch a neighbour who can babysit our son. In the same moment also my oldest son's get home. He had heard on his answering machine that I needed help. 

Once out in the ambulance, they could not close the door completely. I had such a cramp your legs just stood right out. It was minus 10 degrees outside and I asked to be open for a while. Health carer took my temperature, 40.5 C. He gave me the drip and the journey continued to the hospital. Once there, I received antipathetic medication intravenously. After two hours, I could go home again.

You´ll never know when it comes to MS. 
To be continued...


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Today 
Today I took the Can-Am Spyder, of the garage. It was ten degrees outside and the sun from a blue sky. It was a good day for a little ride with the motorcycle. We took a two hour ride into town. Finally, winter has released its grip on Sweden. 

A lot has happened this past week. I have not noticed any changes yet after transplantation. 

I do not know how long the cells need to find the right and start working. I also do not know if I received a placebo instead of the real graft. The disease has taken many years to so far. 

I feel good, and nothing is worse. One of the most important decisions I have made is to change the diet.  

My eating habits have made ​​a big difference in my body. My training month at AMEDS in Poland has given me the best conditions for the cells to have a good time.

Wednesday, April 17, 2013

Day 49:21 Car window - TRANSPLANT

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...January 2012, Ski Vacation 
After Christmas celebration, it was time for the "ski mess". The family went up to Vemdalen for skiing. The youngest daughter had competitions with her club, the other in the family would just go skiing. It was nice in many ways. But when the three kids destroying every night with two hours of Family Guy, and The Simsons I longed to my own TV. 
We lived close to the slopes. It was only a few hundred meters down to the target area. One morning it snowed a lot. It came over ten inches. I put on warm clothes and went out into the blizzard. It was not that I went skiing, no
I was more like the fifth wheel undercarriage. In the road and slow. I pulsed through the snow the 150 meters to the target area. I had a pair of ski poles as walking aids. I spent all the energy on the way there. Even though it was downhill. Once there, I started thinking about how I was going to take me home again.
Luckily, youngsters ran scooter back and forth where I had gone. In the afternoon the snow was so flattened that I could go there. When I entered the apartment I was lying on the floor 15 minutes and got his breath. I had absolutely nothing to do in the mountains. 
When we packed up the car for the journey home, it was colder than -25C. We let the car idle for loading. When all was finished, the children were taken from the apartment. The car was warm, so no need to sit and squeezed with jackets in the back seat. The jackets were already packed in the car. 
All the car doors were closed from the outside to retain heat. The heat was left in the car for three hours. The fucking car had gone into deadlock, with the engine idling. I was thinking, mabye I can remember any good tricks from youth to get into a car without a key. I did indeed, but, it was a Volvo 142 from 1969. Audi Q7 did not have the same locking system as Volvo. It was not possible with a wire hanger. 
I took the defeat and called for a salvor. He was on his way to an accident 140km from where we were. He thought he would my place to help in about three hours. The car was filled up, so gas was not a problem. It would surely be enough to idle for 24 hours. 
I wanted to go home. The apartment there was a small hammer. I thought a small window is less expensive than a large one. I broke the small side window in the cargo area. No problem, we got into the car and was able to start the journey towards home.One tip, the smaller the window, is much more expensive to repair. Cheapest is the wind-shield. But, on the other hand, 600km in the winter without wind-shield, is not an option.
Speaking of wind-shields. I remember a story that is twenty years old. A friend of mine smuggled crabs from Norway to Sweden. He had an old WV bus. He had been in Stavanger and bus filled with live crabs. Approximately 300 kg. In order to avoid the duty, he went on small gravel roads across the border. On one of the small roads he collided with a moose calf. Moose almost landed in the lap of him. There was nothing called cargo safety at the time. The live crabs were loaded into open boxes ... 
Obviously, many boxes broken in the crash. Many crabs slipped out of the woods. He did his best to catch the fugitives in the dark. 
The journey continued to Stockholm a moment later, with only 200 kg crabs and a moose in the cargo area. However, missing was the car's wind-shield. He drove carefully the 400 km to Stockholm in the rain. 
To be continued...


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Today
This morning I vent to the hospital for my first transplant. The procedure took about five hours. It is research so I don´t know if I got my own cells or placebo. The procedure went smoothly, and the crew at the hospital are really nice.
I went home in the afternoon, and could not feel anything special at all. Not good or bad. Status was the same.
In the afternoon me and my wife went for dinner at Vapiano. I was very hungry.