Day 58 Thailand - Problem solving

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... February 2012, Thailand again. part II 
After our road trip we went to my father in laws house in Hua Hin. There we had some lazy days in the sun. We had set our routines at my previous trips there. It was nice to be down in the heat when the body was stiff and spastic. I went for massage almost every day. Weeks of Thailand made a big difference. It's nice to be in the heat without the body stops functioning. I can thank that to CCSVI wich I done at AMEDS clinic in Poland 2011. The surgery has made a big difference in my higher brain functions and on my mental endurance. 

When I came back to Sweden it was was much to attend to at work. Many meetings and negotiations. I tried to have a schedule of the day's activities as my energy enough. I'm not saying it's easy, but it works. 

Unfortunately, the disease became more reminded all the time. You can do many things differently, or to allow others to help. Finally, I come to a limit, when a task is no longer possible to perform. It's sad, but a fact. It is not possible to find alternative solutions in the infinite. 

End of the road had come to experience travel. It becomes too difficult to travel from now on. I am still grateful for the travelling I have done until now. Who knows, maybe the future can find a cure for MS. 

I can guarantee, I want to be first in line for such a treat!
To be continued...

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Today 
It was a busy day today. Much problem solving and not very efficient. It is by far the worst situation I can have. When I do not get to do one thing at a time. It drains the little energy I have very effectively.

Tomorrow is a new day. :)

Day 32 : 4 - Post training & Post CCSVI

... April 2011, after surgery 

It was unbelievable, the first time after the operation of AMEDS in Poland. I was almost without MS symptoms. It was like all the problems disappeared overnight. Cardiologist Piotr Pavluksuc I met in Uppsala on CCSVI lecture a week later. I said to him, Poland has a new citizen. Dennis Johansson, born 27 April 2011. Thus, I have two nationalities, a Swedish since 1963, and a new self-imposed Polish from 2011. 

My status 
The right jugular vein had no flow at all in a sitting or standing position. There was a very small flow when I lay down. Left side worked and other veins were ok. EEDS estimated at 5.0 by the neurologist in Poland, the latest Swedish test was in Dec-10 4.5 (KS), and in Oct-10 4.5 (rehab). Last flare in Dec-10 made apparently some residual symptoms. 

The right vein was blasted 2 times with different sizes of balloons. The flow was restored, from 0% to 75% of normal. There was some discomfort at the surgery, but still quite affordable. What I experienced as the hardest was to lie still on my back for so many hours afterwards. 

Best experience of the operation was that the feet were warm again after surgery and the pizza my wife fed me after the surgery. I was hungry as a galley slave. 

I had obviously noticed some improvements before lunch, but it had only been a few hours since I got out of bed. My thought was that any improvements will probably sneaking in coming months. 

Oh so wrong I was. Four days later, I can say; 

-Dressing without problems 
-Can stand on one leg again 
-No problem with stairs 
-Left hand works much better 
-Balance work 
-No panic to the toilet 
-No brain fog 
-No fatigue 
-No heat intolerance

I've probably forgotten something, but it feels like the clock screwed back a few years. 
 

CCSVI conference in Uppsala 
As I mentioned at the conference, I've barely been home a week after the surgery in Poland. My day started at 5:30 this morning, with activity all day. This had absolutely not been possible before my trip to Ameds. The volume was at maximum with house music in the car between Uppsala and Stockholm. It has not been like that the last 5 years! 

It just gives me more water on CCSVI mill. Cognition has rebounded as well. Summarizes I week, I wonder what the heck I've been doing the last few years. I've been struggling with strategies to get the energy to suffice the most important. Extinguish fires, and to ensure that everyone in your family have food in your stomach. Not even I have been particularly successful at. There, my wife took more and more responsibility.  

Sauna have to wait until tomorrow, when who should be filled up with beer in the fridge grossly neglected her duties. I'm thinking of sacking that fuck. :)
To be continued..

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Today
Food again

Breakfast

I has been a lot talking about the diet in this the blog. I am getting more and more convinced that food is one of the keys to mastering MS. I don´t really care about the 7 kilos I have lost in less than five weeks. I was not fat before, 82kg and 183 centimetres tall. What I care about is the change in power and how good I am feeling right now.


It's not a big sacrifice to opt out of certain raw materials. Profit is tenfold greater. I am very happy to have got to get started and teach me how I should proceed. I do not undergo a diet is the hardest part. It comes later in everyday life. 

We humans are basically collectors since the Stone Age. It's all about planning and organizing. Sure, it takes a lot of time. But it's worth it. It's about finding your innate heritage, and practice them.

AMEDS Rehabilitation Program
My evaluation will be posted under the topic in the side bar. 

Stem cell
Next on the agenda will be stem cell transplant. The first date is confirmed to 16th of April. The second treatment will be in September.

I am currently not taking any drugs against my MS. I hope I do not get relapses during treatment. Should it happen, stem cell treatment may be discontinued.

I will eat my carrots and hope for the best. :) 

Day 30-31 : 2-3 - Full speed ahead, finding food

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I will continue with my history during the weekend. The time has not been enough this week.

I will tell about the time after CCSVI next. 
To be continued..

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Today 
The days are flying...
Now I am back at work again. I am feeling good after the rehab in Poland. I have used a lot of time to get food according to my new diet.

It is not only carb to take into account. It should also be gluten, lactose and basically meatless. As spice to everything, it must be anti-inflammatory and organic.

I am looking to take my gun and go into the woods and hunt any wild animal. Finding ingredients to the diet is not easy. I've been in five stores and found some here and there. When everything is collected the cooking starts, and planning for next meal.

Yesterday menu
07:00 Breakfast, Tomato soup with wild rice
10:00 Snack, Green Apple
12:00 Lunch, Salomon with Carrot, Zucchini and Asparagus
16:00 Snack, Carrot Ginger and Celery Juice
19:00 Dinner, Black Quinoa with Feta and Kalamati Olives 

All meals with Green Tea and Flaxseed Oil. To all meals, a handful vitamins. 

Despite all efforts to find the right ingredients, I feel very good on the diet. With planning, it's probably not that difficult over time. I have definitely changed my eating habits for good. It may sound simple, but I probably would not have able to do all this on my own.

Diet has made ​​a big difference in my life. Thanks Ma ... I mean Olga for the support!  

Day 27 - Piotr & Dagmara, my Polish heroes

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Check out 
I returned Ashamed to my sickbed. This was not good. Cardiologist is pissed, and rightly so. The exercise of the stairs was maybe a little unnecessary. Okay, I will try to sit on the edge of the bed and be spanked on my fingers.  

Piotr Pawluczuk

My concerns proved to be unfounded, Piotr came with a big  smile into my room one moment later. It's good, the procedure went well yesterday. He examines me thoroughly. I had to do a number of neurological tests. If I'm not mistaken was also an ultrasound examination. 

He says that the surgery went well. Blood flow in the jugular vein was restored to 70% from almost non-existent. He had found several constrictions that he had successfully expanded. He also said that the next month is important to see if the blood flow will function over time. He says he will write me out of the hospital in a few hours. 

The last hospital lunch

After a while the nurse with a syringe. She wanted to exercise injection technique with me. I asked her where she wanted syringe? She looked horrified at me and said, It is YOU who will have the syringe - Not I. Okay, where should I have it? In the stomach? Subcutaneous? I opened the package and put the used syringe in my stomach flesh. She watched with open mouth and exclaims - that was unnecessary. I replied that I took daily injections for several years. She walks out of the room smiling. 

Next visit the room was neurologist. She reviewed my medical records and MRI images from yesterday. She gives me about the same draw as I received of my neurologists in Sweden. She thought that I was able to experience some improvement after the successful surgery yesterday. She also said that I would be aware of that some improvements may go back. 

I was discharged in the afternoon with a bag of syringes and tablets. I hobbled down the corridor with my roller bag and my crutch. When I got out of sight of the medical team and the staff I gave me the crutch and the bag to my wife. I went by myself, slowly but by myself. 

We return to the hotel in Warsaw. I had with great appetite tossed in my mouth the chicken club I had for lunch at the hospital.

Now we are at the restaurant at the hotel. I was hungry and thirsty. Party time. We did not even go up to your room, but right into the restaurant. 

Club Sandwich and a giant beer, please. And quickly. Once the food has been served, I were token the sandwich in my right hand and the large beer glass in left. I eat and drink at the same time. My wife stop talking and sit quietly and stare at me in surprise. I ask, what? She replies thoughtfully, Dennis, you´re holding the glass in his left hand and drinks. 

That I have not seen in many years.
To be continued..

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Today at the Rehab

Dagmara Somow

The last full training day. I had to admit, I am a little bit tired. (please don´t tell Dagmara) I has been training 27 days in a row.

All days has been full days except for one. It was a half day.  I will wait until I reach Swedish soil before I give my final statement. But I guess, you know what it will contain.

Now I am sitting in the bar, and writing the last post on Blogger from Poland this time. 

I am looking at the glass of beer above in this post... No... I can not... Or can I... No I can´t... Maybe a glass of vine... It contains no sugar, gluten or red meat. Or maybe I go for the vodka... No I can´t, it contains alcohol... 

I go for the wine. That´s only vegetables.

I want to dedicate this post to Dagmara and Piotr. They really meant a lot to me. The improvements I did on my first visit to Poland in 2011 still largely remain. The fucking crutch I had with me four weeks ago, I leave in Poland. :)

 

Day 26 - Liberation

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CCSVI Liberation 
It was a little uncomfortable when Piotr punctured vein in the groin. A moment later, I thought of the text of Eva Dahlgren's song. "It lives somewhere else in my body"... It was a strange feeling when Piotr drove the probe up through the body, with the accompaniment of Queen, "We Will Rock You". It was rock-n-roll for real. 

It was very interesting to see on the monitor is exactly what happened in the body. He showed and told all the time what he found, and how he corrected the stenos-is. After the last enlargement, I felt that my feet were getting warm again. 

The procedure was completed in less than an hour. When I came up to the room again, my wife ordered pizza. Last meal has been breakfast. I was hungry as a galley slave. I had to lie still on my back for 12 hours. I was certainly not supposed to get me up or tighten my stomach. My wife fed me pizza, the Coca Cola I drank with a straw. After my feast, she went back to the hotel. 

I wake up after a few hours and was pee for real. I waited a while, maybe the nurse would come in and look at me. The alarm button had dropped on the floor, so I had no use of it. I could scream, but at 2 o'clock at night, it would bring the entire department to a standing position. 

The nurse comes in at 3 o'clock. I told her, I have to pee NOW! She smiled and shoved the pelvic bottle at the shelf on the bedside table. Completely within my reach. I fill the bottle to the brim, empties out a bit in my coffee mug and a little to the empty glass on the bedside table. Then pee a little longer. It was liberation for real. After that I fall asleep until morning rounds came and woke me up.

The bandage was removed and replaced with a small swab. I was still not aloud to get up before the doctor looked at the wound. She arrived a moment later and gave me the green light to gently go up and take a shower.

I felt good, and could feel that the body response was a little better. Obviously I want to test my ability. I walked slowly back and forth in the hallway. It went much better than yesterday. To increase the difficulty level a bit, I went out into the stairwell. I went up two floors. No problem.  

On the way down I met Piotr in the stairs. He looked very sternly at me and shakes his head.

DENNIS - BACK TO YOUR ROOM - NOW!
To be continued...

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Today at the Rehab
I will always try to do everything a little better. In particular if I can do a exercise good, I will try to make it a little harder. All the machines in the gym has a build-in computer. When you enter the machine you put a small USB key in the machine.

This morning Dagmara took my stick. I did not use it yesterday, and she asked me why. I told her the weights and the count was lady-wise. She re-programmed it and gave it back to me with the words, Dennis now you can do the machines.

Pull-down

I took the stick and putted it in the pull down machine. The display told me to put on 25kg and do 15 repetitions. 

Good now we´re talking. I used to do 10 at 20kg. The machine then told me to take 1 minute break. I passed the message after 10 seconds. Next set 30kg and 15 repetitions. Puh, that was heavy. Next machine... No... I was not finished, Rest for one minute. I used the full minute. The third set 35kg and 15 repetitions. Well I can handle the weight but 15...

Rubber-band

Next it was my turn to make fun of my self. I ordered 5 meters of red rubber-band from the shop. Then I put the rubber-band under my feet and tied it around my leg.  

The aim was serious, I would help my left leg to release some weight from it. 

Everybody did laugh at me, but it worked. I was just looking for the feeling that the left leg will follow the right. It succeed.

We did an extra walking test today to verify the results from yesterday. MS is a strange decease, not two days are equal. Today result were better than yesterday. I can feel the difference between the days, but it is hard to explain to others.

Now I have it on paper.  

Item 3, Quality

What ever you look at, put in your mouth or take in your hand is very well done. It is 100% quality, no compromises. For example, the training pool is seventeen meters long made in stainless steel without joints. Impressing. The indoor climate is good and comfortable. The WiFi is covering every square inch of the building with good speed. There is soft music in all common surfaces with good sound quality. My guess, it is as good as any Design Hotel in the world.

Now it is time for me to go back to my room. 

Tomorrow is the last full day.